Biobank ethics refers to the ethics pertaining to all aspects of biobanks. The issues examined in the field of biobank ethics are special cases of clinical...

UK Biobank is a large long-term biobank study in the United Kingdom (UK) which is investigating the respective contributions of genetic predisposition...

biobanks. Biobanks have provoked questions on privacy, research ethics, and medical ethics. Viewpoints on what constitutes appropriate biobank ethics...

and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards (IRB) and...

non-profit, British genomics and genetics research institute. UK Biobank and the UK Biobank Ethics and Governance Council. The KEMRI-Wellcome Trust Research...

2012). "Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics". International Journal of...

national committees, including as chair of the National Cancer Institute Biobanking Ethics Working Group and chair of the Advisory Committee to the Department...

concept for biobank regulation. It includes recommendations on introducing biobank secrecy, on defining permissible use, on involving ethics commissions...

develop biobank infrastructure. The guidelines which the OBBR published were among the first generation of policies relating to biobank ethics. The OBBR...

Auray-Blais, C.; Patenaude, J. (2006). "A biobank management model applicable to biomedical research". BMC Medical Ethics. 7: 4. doi:10.1186/1472-6939-7-4. PMC 1475589...

Chairman of the Wales Cancer Bank Advisory Board, a member of the ethics committee of UK Biobank, president of several charities including HealthSense (formerly...

when they are presented with the option. Withdrawal from participating in biobank research is problematic for many reasons, including the fact that participant's...

must be prohibited." Sweden's The Genetic Integrity Act (2006:351), The Biobanks in Medical Care Act (2002:297), Health and Medical Services (Professional...

laws. Biobanks in Australia are mainly under the regulation of healthcare privacy guidelines and human research ethics committees – no formal biobank legislation...

Wolff, S. Schreiber, A. Buyx: Broad consent for healthcare-embedded biobanking: understanding and reasons to donate in a large patient sample. Genetics...

the United Kingdom using confidential General Practice clinic data. A biobank is a place where human biological specimens are kept for research, and...

Nuffield Council on Bioethics from 2014 to 2020 and previously on the UK Biobank Ethics and Governance Council from 2007 to 2013, and a member of Nuffield Council...

biobanks and organ transplantation have been his main topics in the ethics of biotechnologies. Additionally, Hofmann has published in research ethics...

organizations in being their own research advocates. They also maintain a biobank as a central storage facility for several organizations who otherwise would...

of the longevity of 409,693 individuals from British death registry (UK BioBank) with the conclusion that two copies of CCR5Δ32 mutations (homozygotes)...

Harrell, Heather (2016). "Biobanking Research and Privacy Laws in the United States". The Journal of Law, Medicine & Ethics. 44 (1): 106–127. doi:10...

; Heeney, Catherine; Parker, Michael; Smart, Andrew (2012). Governing biobanks understanding the interplay between law and practice. Oxford [England]:...

have come to light involving sharing of genetic information to genomic biobanks and subsequent novel treatments. Many countries are still developing policies...

developed to enable functionally informed rare variant association analysis in biobank-scale cohorts using efficient approaches for summary statistic storage...

Research, the National Academy of Sciences, Engineering, Medicine, UK Biobank, CDC, ESOF, Stem Cell Network, and Genome Canada. He is an elected Fellow...

she was also a member of the Human Tissue Authority and of the UK Biobank's Ethics and Governance Council. Macintyre was appointed as the inaugural chair...

Bioethics/Law. Issues: Biobanking; Consent; Access (Data/Samples); Commercialization; Confidentiality/Privacy; Research Ethics; Governance. Proficiency...

Ellen Wright Clayton (2005). "Informed consent and biobanks". The Journal of Law, Medicine & Ethics. 33 (1): 15–21. doi:10.1111/j.1748-720x.2005.tb00206...

wine in a new bottle" (2014) "Biobanking and Privacy in India" (2016, with Sachin Chaturvedi and Krishna Ravi Srinivas) Ethics dumping: case studies from...

sex selection and the proposal that led to the establishment of the UK Biobank. "Participant Detail". Within and Beyond the Limits to Human Nature. Retrieved...